Wroxham & Coltishall

Youngsters run for it to help Rebekah

Just Regional
Aug 29, 2014 3 mins read

A group of primary school children from Buxton, Lammas, Brampton and Aylsham are raising hundreds of pounds for charity, in support of one of their friends.

The six boys and girls aged nine and 10, from Buxton Primary, are raising money for research into Dravet Syndrome. (Pronounced Drav-ay), a rare, life-limiting type of epilepsy that one of their young friends, Rebekah Hughes, suffers from.

Her friends and twin brother Henry have organised a three-mile sponsored run from Buxton to Aylsham.

One of the mums, Buxton teacher Jo Buchanan, has set up a JustGiving page for the friends online, so anyone can donate. Already it has raised more than £270 and the children hoped to collect more than £500 by the time they ran on September 2.

Rebekah’s mum, Annabel, said: “What the children are doing is lovely, especially because they came up with the idea themselves. Anything that raises awareness of Dravet Syndrome and helps research to stop other children suffering from it is fantastic.”

Buxton head Debbie Leahy said: “These children are amazing. I am so proud but not surprised that they are doing this. Our children are all very caring and when Rebekah’s brother Henry brought some wristbands and T-shirts into school last term to raise money, everyone was really pleased to help.” The children have also asked for collections from the school’s Christmas plays to go to Dravet Syndrome UK.

Rebekah, nine, from Aylsham was taken to the Norfolk and Norwich University Hospital by emergency ambulance twice last term, after suffering life-threatening seizures.

She has constant one to one care at school and 24-hour monitoring.

Rebekah cannot walk, speak or write as well as her friends, she has a feeding tube and has sleep problems.

But she’s full of fun and has lots of friends.

Grace Buchanan, 10, from Brampton, said: “We want to raise as much money as possible to help people like Rebekah.”

Jess Curtis, 10, from Lammas, added: “We are doing this run because we want Rebekah to have a fun life to live.”

Dravet’s Syndrome is described as a catastrophic neurological condition causing severe seizures alongside other conditions such as learning disability, ataxia and autism.

Rebekah’s mum said: “As the children grow up the symptoms increase. The seizures are life threatening, Rebekah has been in intensive care countless times.”

You can find out more at www.dravet.org.uk and sponsor the youngsters through www.justgiving.com/runningforrebekah.

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